A 30 year-old woman’s eyes constantly closed shut for three days straight. The woman opened up that she has been battling with the issue since 13 years! Natalie Adler was 17 years old, that’s when she first found herself waking up with swollen eyelids. What’s more, even after 10 years of battling with the illness, the cause still remains a mystery. Doctors all around the world are baffled; her illness is so rare that it does not have any name.
Despite having undergone multiple surgeries there is still no medical explanation to her illness and has been dealing with the traumatizing symptoms of her illness for 13 years. She said, “I don’t have an overall diagnosis”.
She further added,
“They just developed into this random cycle where they would spasm shut for three days and then open for three days. It’s just a daily battle.”
Adler has been left legally blind after 99 percent of the muscles from her eyelids were surgically removed!
Despite having undergone multiple surgeries, she’s still struggling with the mystery illness. Adler regularly gets Botox injections to help keep her eyes patly open, however, despite it, she still experiences complete blindness at least once a month.
She opened up that her husband has been very supportive throughout her struggle. ‘He just brought me back from the brink,’ she said.
When Adler first met her now husband, she chose to hide her illness from him. However, it did not affect how he felt about her even when he found out. Her husband doesn’t think her illness defines her, “When it all came out, I was completely water off a duck’s back. It didn’t bother me at all. Her illness doesn’t define her.”
However, despite her condition, Adler remains hopeful and wishes to write a book to share her story. “I never lose hope because I just can’t and that’s not the person I am,” she said.